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An investigation of Myalgic Encephalomyelitis Clients’ Experiences of Psychotherapy
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Name of investigator: Bobby Bradstock
Title of research project: An investigation of Myalgic Encephalomyelitis Clients’ Experiences of Psychotherapy

Purpose of the Research
The purpose of this study is to gather information/data gained through qualitative interviews or surveys, answered by Myalgic Encephalomyelitis* (M.E.) clients, to provide psychotherapists working with M.E. clients with current information to inform their practice. The surveys questions will be based on the lived experiences/perceptions of M.E. clients, in relation to psychotherapeutic treatment, since being diagnosed with M.E. 

*For the purpose of this study, the term M.E. clients, will be used to refer to participants in this cohort. Current British diagnostic criteria are, at present, under review leading to many patients self-diagnosing, with very few individuals having obtained a diagnosis from a medical professional. The Canadian Consensus Criteria self-report will be used to define M.E. clients and the severity of their illness at the time of completing the Survey. 

There are a number of small risks that are inherent in this research. Although every reasonable effort has been taken, confidentiality during actual internet communication procedures cannot be guaranteed. Data may be stored on backups or server logs beyond the time frame of this research project. No identifiable information will be requested as part of the questionnaire process. Please do not provide names or locations which may deem a person identifiable in your answers to any questions. By participating in this research, you will be asked to respect the confidentiality of others who may be involved with you professionally with regards to your diagnosis of M.E.

You will be asked questions about your experiences and perceptions of psychotherapy. This could mean that you may feel some questions invade or infringe on your privacy. If this occurs, you have the right to refuse to answer questions within the research activities. You also reserve the right to withdraw from the study at any point prior to submitting your survey. Once your survey is submitted and you decide to with draw afterwards please contact the administrator at brad211@newman.ac.uk and provide them with your participant number which you will create through this questionnaire process. You will not be able to withdraw your information after the 6 week withdrawal period after submitting your response.

Some individuals may experience difficulties with physical and mental health and participating in research that enquires about their experiences which may raise additional issues for your consideration. Should you decide that you would like to speak with someone about any issues that may arise you can:
• request an appointment with a Newman counsellor by emailing studentsupport@newman.ac.uk 
• Samaritans - 08457 90 90 90
• Mind - 0845 766 0163
• BACP - http://www.itsgoodtotalk.org.uk/therapists/

Specific research activities will include:
• Providing basic demographic information
• Completing a M.E. Diagnostic Self Report (to gather information on the level of severity amongst individuals participating in the research)
• Providing responses to questions on the survey 

Following the research activities:

• your contributions will inform future conference proposals, journal article submissions, reflexive journals, doctoral assignments and other methods of distribution to inform academic and professional practice. Your data will be retained for a period of 6 years after the closing date to allow for further research to be conducted.

Within these methods of distribution:

• your details will not be shared; 
• you will not be asked to provide your name or date of birth
• you will not be identifiable 
• any information you share will be treated with the strictest confidence.

Contact information:

• If you have any concerns regarding potential breech of ethics, please contact Newman Ethics Committee via [supervisor] K.F.Hogan@staff.newman.ac.uk

Name of investigator: Bobby Bradstock

Title of research project: An investigation of Myalgic Encephalomyelitis Clients’ Experiences of Psychotherapy

The purpose and details of this study have been explained to me. I understand that this study is designed to further scientific knowledge and that all procedures have been approved by the Research Ethics Committee of Newman University.

I have read and understood the participant information sheet and this consent form.

I have had an opportunity to ask questions about my participation.

I understand that I am under no obligation to take part in the study.

I understand that I have the right to withdraw from this study for any reason, before submitting the questionnaire and 6 weeks after submitting the questionnaire and that I will not be required to explain my reasons for withdrawing.

I understand that all the information I provide will be treated in strict confidence.

I agree to participate in this study. *